The PSTT/ETT and Ultra-High Risk GTN Database project

The idea for the PSTT project originated from discussions some years ago - colleagues agreed that that such an initiative would be pivotal to our understanding of this rare form of trophoblastic disease and the UK group agreed to set this up. Earlier versions of this database proved that the project was achievable but were too detailed and therefore unwieldy. Taking into account comments from collaborators worldwide the database was refined and shortened. Data on endothelial trophoblastic tumours (ETTs) was included.

We now have data from thirteen countries - 323 patients, making this the largest ever collection of PSTTs/ETTs.

We have relaunched the project collecting data about Ultra High Risk Gestational Trophoblastic Neoplasia along with previously unreported PSTT cases. If you would like to take part in this exciting project please contact Professor Barry Hancock

Emeritus Professor Barry Hancock on behalf of the International Society for the Study of Trophoblastic Diseasea - ISSTD